life with a rare lung diseased child

To learn more about chILD visit www.childfoundation.us

Monday, July 21, 2008

Living to Breathe
Posted by rare lung mom at 9:10 PM

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About Me

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rare lung mom
I am mom to a 7yr old daughter who sufferes from the rare lung disorder named Children's Interstitital Lung Disease.
View my complete profile

Julia blowing dandelions in the yard

Julia blowing dandelions in the yard

Princess Julia

Princess Julia
Being an oxygen princess is hard work

My Blog List

  • Respiratory Therapy Cave
    When the Chart Lies: The Absurdity of Modern Medical Coding - The doctor looked at me and said, "This patient does not have hypoxemic respiratory failure." "That's not true," I replied. The doctor looked confused. ...
    1 day ago
  • She's not contagious...really
    And so here we are... - I know it's been a week since we've been home. I'd like to say we were able to sit back and relax but that has not been the case. I didn't update for the w...
    12 years ago
  • Kids with ILD
    Maddie Schmit - Check out this cutie here on this site: http://blue.wths.net/faculty/schmit/maddie.htm
    17 years ago
  • Madison-NEHI
    Madison's Journey - *Our Little Lady Was Born...* * Madison was born at 38 weeks weighing 6 pounds, 3 ounces and was a very healthy little girl. The only noticeable thing abou...
    18 years ago
  • The chILD in Matthew - NEHI
    Matthew's Story - *What a **Blessing!!* Matthew was born on February 20, 2006. He was born full-term and healthy to the best of our knowledge. I immediately started breastfe...
    18 years ago
  • Maddie & Hallie - ABCA3 Surfactant Protein Deficiency
    State of IL and Home Care Help - We've been experiencing a bit of a crisis involving home health care. It's a long story - but becasue of this crisis, I've been searching for assistance in...
    18 years ago
  • Our Journey with ChILD
    -
  • Tales from a NEHI momma
    -

Favorite links

  • Breathing is life
  • Hike for Lung Health
  • chILD Parents Support Group in Yahoo
  • The chILDren's Interstitial Lung Disease Foundation website
  • Jenn's Myspace

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Blog Archive

  • ▼  2008 (15)
    • ►  December (1)
    • ►  October (3)
    • ►  August (1)
    • ▼  July (10)
      • shopping with a lung disease...yuck
      • Homecoming
      • chILD Mystery Diagnosis iPodcast
      • off to D. C.
      • Living to Breathe
      • Hike for Lung Health 2008
      • new oxygen tubing and cannulas
      • oops on the slideshow
      • No title
      • A Rare Lung Disease journey begins
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