Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative.
http://www.articles.complexchild.com/Oct2008/00078.html
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About Me
- rare lung mom
- I am mom to a 7yr old daughter who sufferes from the rare lung disorder named Children's Interstitital Lung Disease.
Julia blowing dandelions in the yard
Princess Julia
Being an oxygen princess is hard work
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