chILD Mystery Diagnosis iPodcast

Listen to the podcast version on the Discovery Health's Mystery Diagnosis show on chILD. "Lariah Palma"
Mystery Diagnosis Podcast

off to D. C.

Just wishing my friends Ann and Liz good luck as they hit D. C. to give a speach on child safe medical equipment. They are taking with them several stories and hundreds of pictures of small children tangled in oxygen tubing, children pulling out feeding tubes, children with huge oxygen tanks to lug around, and much more. May their voices and our childrens' pictures make way for some equipment changes.

Living to Breathe

Hike for Lung Health 2008

I just wanted to remind everyone about the Hike for Lung Health.
Julia will be participiting in this again this year. We will be doing the "virtural" walk meaning we will be walking here in our hometown and not in Chicago, but hey the money is all going to the same place for a great cause.
http://my.imisfriendraising.com/personalPage.aspx?registrationID=260181&LangPref=en-CA
That is the link to Julia's fund raising website.
Here is the link to the YouTube video from the Hike for Lung Health group.
http://www.youtube.com/watch?v=Ro6wmiPajLU

new oxygen tubing and cannulas

Hip Hip Hurray we got new cannulas and tubing today. And I finally (after 4yrs of Julia having Oxygen) , got swival clip connectors. Why on earth we were never given these to start with I will never know. Julia can now go 107 feet and not get caught on corners, furniture, toys, you name it. Of course it took me asking for a "water trap" to even get one of those way back when. Now we love our O2 man dearly, but you can tell that most patients who use oxygen are elderly adults who don't have to worry if the tubing will stretch from the house to the trampoline. I am so glad that two of the moms from the chILDren's Interstitial Lung Disease Parent Support group will be attending the medical device workshop in Washington D.C. soon. They are planning on having about 200 people from various groups that are interested in pediatric device development. They have expressed great interest in our stories and have asked us(chILD) to present in 2 different sessions and have asked Ann Gettys to be on a special panel at the end of the meeting. It is all very overwhelming, but it is a great venue for us to get our kids stories out there. I will post what she has to say when she gets back. Liz Jenkins will also be attending with Ann on behalf of chILD. For all you Oxygen dealers and RTs who read my posts try to remember not all of your patients are old farts. Some of them are snappy, sneaky, Houdini-like, little blonde hair girls who will put you through any test. Most worse than you will ever encounter in school

oops on the slideshow

Well I did my best to transfer the slideshow from "Slide" that I used in Myspace to post it on over here in blogger. For some reason it didn't work quiet the way I had wished. All you seee is a bunch of http text and then the buttons to view the show. Only when you go to view it the music is not there. Grrr!
http://www.slide.com/r/AM-vma5Z2j_Hu9jw08-3WAY1lnom83TJ?previous_view=lt_embedded_url