Below is a link to an article a friend of mine (whose son has the same lung disease as Julia) wrote. It is quite informative.
http://www.articles.complexchild.com/Oct2008/00078.html
When Dad Stops Being the Entertainer
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One of the things I've noticed this summer is that my role as a dad is
changing.
When my kids were little, I was the entertainer. Every summer I was look...
6 hours ago
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